女孩患罕見疾病「無法控制臉上器官」2歲時病情惡化瀕死,姐姐「親吻妹妹肚子」後讓她活過來!

2014年12月17日,蘇格蘭寶寶史密斯 (Poppy Smith) 在母親懷孕29個禮拜後出生,當時早產的她就只有907克。   出生的首3個月,她都在病房中渡過。當史密斯的情況穩定後,她終於可以跟家人一起回家。史密斯有一個姐姐跟一個哥哥,分別是以利沙 (Elisha) 和阿爾菲 (Alfie)。

March 17, 2017
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2014年12月17日,蘇格蘭寶寶史密斯 (Poppy Smith) 在母親懷孕29個禮拜後出生,當時早產的她就只有907克。

Poppy Smith was born on December 17, 2014 in Gullane, Scotland.

 

出生的首3個月,她都在病房中渡過。當史密斯的情況穩定後,她終於可以跟家人一起回家。史密斯有一個姐姐跟一個哥哥,分別是以利沙 (Elisha) 和阿爾菲 (Alfie)。

The baby girl spent the first three months of her life in the neonatal ward.
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史密斯除了是早產嬰之外,還患有罕見的遺傳性神經失調疾病:牟比士症候群 (Möbius syndrome)。她的顏面神經麻痺,無法控制臉上的器官,包括眼球、嘴巴、眉毛等,也沒辦法擺出任何表情。

In addition to being premature, Poppy was also born with Moebius syndrome.

 

這個疾病的成因仍然是不明的,嚴重程度因患者而異,但在大多數情況下,並不會影響到患者的智力。

What causes Moebius syndrome is unknown.
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患有牟比士症候群的人,常常被認為露出了不友善的表情。事實上這個疾病對她的影響很大,讓她在進食或呼吸方面都非常困難。

Those with Moebius syndrome are often described as having a mask expression.
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醫生曾警告她的家人,史密斯很可能一生也無法說話或走路。但史密斯的父母、姐姐和哥哥從來都沒有放棄,用心地照顧妹妹。在15個月的時候,奇蹟出現了!她開始能夠走路,跟其他早產兒一樣,讓一家人都非常感動。

Doctors warned Poppy's parents that their daughter may never talk or walk.

 

堅強的史密斯開始慢慢地戰勝一切負面的預言,「我們在她第一個生日時把她帶出去,可以感覺到她每天都有變得更好。」34歲的爸爸斯蒂芬 (Stephen) 表示。

The little girl was defying the odds.

 

雖然史密斯曾經在1歲時心臟驟停,但她又再一次戰勝了病魔。但在她2歲時,可怕的事情發生了。

Although she had respiratory and cardiac arrest by age one, Poppy was doing well.

 

有一天31歲的母親艾米 (Amy) 走進她房間打算叫醒她時,發現她沒有回應。「我們感覺到她的心跳,,但她沒有辦法作出任何回應。她還有呼吸,但不斷在喘息。」

Amy went into Poppy's room to wake her toddler up but the girl wouldn't respond.

 

她馬上被送到醫院治療,2天後醫生曾一度認為她的狀況有好轉,應該不再需要呼吸機。

She was taken to her local hospital but was transferred to the more specialized Alder Hey Children's Hospital in Liverpool.

 

可是好境不長,史密斯的情況又再次惡化。「她的眼睛好像滾到頭後面的樣子,X光片表示她的肺充滿了液流,她又再一次呼吸驟停。」斯蒂芬說。

That was short-lived as things progressed for the worse rather quickly.

 

「那天晚上,她開始不斷抽搐,身體狀況快速惡化。」在多番檢查過後,醫生發現她有嚴重的缺氧性腦損傷。「當我問醫生她能否再次走路或說話時,醫生回答他們不知道史密斯能否活下來。」爸爸說。

"That night she started to develop twitches and seizures. She was deteriorating fast," he says.

 

當時史密斯完全失去意識,讓一家人都非常心碎。「我的心從來沒有這樣痛過。」爸爸表示。

"She couldn't feel anything and wasn't responding to a torch being shone in her eyes," Stephen says.

 

她的新聞報導出來後,當地音樂家為史密斯製作了一張慈善專輯,為她的家人募集醫療費用。

While the family was trying to make sense of what was happening, three local musicians recorded an album to raise funds for Poppy.

 

專輯收集了由當地學生演唱的聖誕歌,希望可以為史密斯打氣加油。

The album includes, "Jingle Bells," sung by the children that go to school with the Smith kids.
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在聖誕節當天,12歲的姐姐以利沙做了一件沒有人想過的事件,讓奇蹟發生了。當以利沙在史密斯的肚皮上吹氣時,史密斯竟然笑了起來,讓醫生都難以置信!

The family went to mass on Christmas eve, lighting candles for her, and asking a priest to visit their daughter.

 

這個意想不到的反應,為整家人帶來了希望。除了笑之外,史密斯的手和腳也有輕微地動了起來。醫生告訴他們這是脊髓反射,但她的家人覺得不只是這樣。

"It was astonishing. We found out afterwards that it wasn't uncommon for people in this state to show emotion, but to us it seemed like she was responding," says Stephen who admits they all felt hopeful afterwards.

 

經過那一次姐姐在她肚皮上吹氣之後,有些東西的確改變了。她的情況慢慢好起來,還開始重新學習講話,讓醫生們都震驚不已。

Slowly Poppy began to make progress.

 

她也開始重新學習走路,「我們不能相信,只是8個禮拜,她就進步了這麼多。」爸爸感動地說。

She also started crawling again and is now learning to walk again.
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「醫生的臉都腫了,他們認為她一輩子也無法再走路或說話,但她做到了,向醫生證明他們錯了。我們相信她一定可以再次靠自己走路、說話,她從出生以來,就是一個小鬥士。」爸爸說。

"The doctors are baffled. They say that she shouldn't be doing what she is doing. They are so glad she is, but they didn't think she would. She's proving them all wrong," Stephen admits.

來源:Dailymail

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